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ALS/MND/other degenerative diseases

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21 minutes ago, Esox masquinongy said:
ALS activist Ady Barkan has died at 39. RIP.


A DDP pick for 17 teams.

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On 13/09/2023 at 14:23, gcreptile said:

Stephen Darby update at the 5-year-mark:

https://www.dailymail.co.uk/femail/article-12512925/Liverpool-Stephen-Darby-Steph-Houghton-MND.html

 

Still very positive. And he was only 29 when diagnosed, so, extremely young. The younger you are, the slower MND seems to move.

He went on Holiday with his wife to Abu Dhabi a few weeks back. Obviously still fit enough to travel and cope with it all. 

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On 02/03/2023 at 21:10, arghton said:

Finnish politician Antero Laukkanen makes one last appearance at parliament, short of breath with what seems to be a mobility scooter next to his chair but still able to talk quite clearly.

 

Another politician with ALS is Torao Tokuda, had it for around a decade now if he hasn't died off-radar sometime recently.

Antero Laukkenen in hospice now

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On 05/12/2023 at 17:13, The Old Crem said:

Stephen Darby has fallen twice this year according to his foundations Instagram page.

 

https://www.instagram.com/p/C0Tp2FSoDbR/?utm_source=ig_web_copy_link&igshid=MzRlODBiNWFlZA==

 

Darby in a video here. Now mostly wheelchair bound and definitely struggling to speak now. I think he'll still see 2025, but he's clearly on the downhill slope.

https://www.bbc.co.uk/sport/av/football/67915248

 

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Rob Burrow has been ‘surprised’ with his CBE by the Prince of Wales.

 

The fact they have presented the medal so quickly suggests it’s not just for the Facebook likes…

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Yep just like when Deborah James got her DBE so soon after she was awarded and she died a few weeks later

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He was behind the quote in my DDP name, clearly famous enough ;)

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On 11/01/2024 at 15:41, Windsor said:

Rob Burrow has been ‘surprised’ with his CBE by the Prince of Wales.

 

The fact they have presented the medal so quickly suggests it’s not just for the Facebook likes…


He met Princess Anne yesterday at an event. Still well enough then to go out in Public. 

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On 08/01/2024 at 23:14, Octopus of Odstock said:

 

Darby in a video here. Now mostly wheelchair bound and definitely struggling to speak now. I think he'll still see 2025, but he's clearly on the downhill slope.

https://www.bbc.co.uk/sport/av/football/67915248

 

 

Darby, Rob Burrow and Marcus Stewart in a photo here: - https://www.bbc.co.uk/news/uk-england-merseyside-68647460

 

Stewart looks alright, Darby wheelchair bound... Rob Burrow - looks utterly terrible. I'd be shocked if he makes it to 2025. 

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Very sad news. 

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For fuck sake, I go to Wiki in the wake of this sad news and this is what I was met with:

 

1376052401_Image02-06-2024at18_18.thumb.jpeg.74d1a390cf4c3defe6e40e52d8637dc7.jpeg

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3 minutes ago, TQR said:

For fuck sake, I go to Wiki in the wake of this sad news and this is what I was met with:

 

1376052401_Image02-06-2024at18_18.thumb.jpeg.74d1a390cf4c3defe6e40e52d8637dc7.jpeg


I wonder if that’s what did him in?

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Well that. is a bugger.

 

I nip out to the shops and come back to this.

 

Needless to say, he was on my Poker Team, so in comes a sub and I'll pick another.

 

RIP Rob, inevitable though it was.

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22 minutes ago, JonNgoat said:

 

I wouldn't necessarily say that this is sad as much as it is a relief, because the guy clearly had no quality of life.

 

There are not many people who would have fought such a dreadful disease with such resilience, keeping such a positive outlook and raising awareness in spite of how much of a strain it was. A true inspiration, and deserved every bit of plaudit that he got. Rest easy dude.

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Very sad indeed. RIP Rob.

 

we should remember that he had a wonderful yet horribly short adult life prior to his diagnosis where he was a sporting legend with hero status doing something he loved and from what I have seen on the documentaries married a wonderful person too and had a fabulous friend in Kevin Sinfield.

 

None of this changes the horrible way he died but there is a life there to be celebrated too - he should not be defined by MND.

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3 hours ago, Master Obit said:

 

I wouldn't necessarily say that this is sad as much as it is a relief, because the guy clearly had no quality of life.

 

There are not many people who would have fought such a dreadful disease with such resilience, keeping such a positive outlook and raising awareness in spite of how much of a strain it was. A true inspiration, and deserved every bit of plaudit that he got. Rest easy dude.

 

 

He was discussed in The Sunday Times this morning and the comment was made that his condition had got so bad that he couldn't even blink. 

 

Yeah, seriously, incredibly brave in the circumstances, a truly horrible medical condition.

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That's a big DDP hit, 23 teams have him as a joker.

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5 hours ago, maryportfuncity said:

 

 

He was discussed in The Sunday Times this morning and the comment was made that his condition had got so bad that he couldn't even blink. 

 

Yeah, seriously, incredibly brave in the circumstances, a truly horrible medical condition.

He couldn't blink?

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