ALS/MND/other degenerative diseases

[gcreptile 10,967]

Three-time Tony nominee Rebecca Luker has been diagnosed with ALS:

http://www.playbill.com/article/rebecca-luker-reveals-als-diagnosis

 

Test for my rule of thumb that the older you are at the time of diagnosis, the faster you die....

[Sir Creep 7,070]

14 hours ago, gcreptile said:

Three-time Tony nominee Rebecca Luker has been diagnosed with ALS:

http://www.playbill.com/article/rebecca-luker-reveals-als-diagnosis

 

Test for my rule of thumb that the older you are at the time of diagnosis, the faster you die....

That’s some enlightening shit right there, boy.

[gcreptile 10,967]

On 07/06/2019 at 20:15, gcreptile said:

Jaci Hermstad, 25, "thriving horseback rider", diagnosed with a particularly aggressive form of ALS that could kill her ability to speak and breathe within a month:

https://www.dailymail.co.uk/health/article-7010927/Woman-25-diagnosed-ALS-eight-years-disease-killed-twin-sister-6-weeks.html

 

She asked for fast-track access to a new drug and Nancy Pelosi and Rep. Steve King worked together (!) to do that:

https://eu.desmoinesregister.com/story/opinion/columnists/rekha-basu/2019/05/28/steve-king-moves-bill-help-als-twin-jaci-hermstad-fda-compassionate-use/1258515001/

 

So maybe she can become the Laura Barry of 2020.

And now Jaci is in hospice care, will the Daily Mail remember her?:

https://www.exploreokoboji.com/news/news-stories/spencer-woman-battling-rare-form-of-als-now-in-hospice-care/

[gcreptile 10,967]

It looks like "very public with MND" person Doddie Weir now needs neck stabilization:

https://www.scotsman.com/health/coronavirus/watch-rugby-legend-doddie-weirs-powerful-message-asking-government-include-mnd-patients-very-vulnerable-list-2533739

[drol 11,944]

On 16/02/2020 at 15:07, gcreptile said:

Three-time Tony nominee Rebecca Luker has been diagnosed with ALS:

http://www.playbill.com/article/rebecca-luker-reveals-als-diagnosis

 

Test for my rule of thumb that the older you are at the time of diagnosis, the faster you die....

She got the 'rona too.

[gcreptile 10,967]

This week's picture of Ady Barkan, the progressive activist with ALS, possibly the most crucial living pick for my DDP team now:

 

Could be worse.... could be better.

[drol 11,944]

On 07/06/2019 at 20:15, gcreptile said:

Jaci Hermstad, 25, "thriving horseback rider", diagnosed with a particularly aggressive form of ALS that could kill her ability to speak and breathe within a month:

https://www.dailymail.co.uk/health/article-7010927/Woman-25-diagnosed-ALS-eight-years-disease-killed-twin-sister-6-weeks.html

 

She asked for fast-track access to a new drug and Nancy Pelosi and Rep. Steve King worked together (!) to do that:

https://eu.desmoinesregister.com/story/opinion/columnists/rekha-basu/2019/05/28/steve-king-moves-bill-help-als-twin-jaci-hermstad-fda-compassionate-use/1258515001/

 

So maybe she can become the Laura Barry of 2020.

Jaci Hermstad dead at 25.

[gcreptile 10,967]

46 minutes ago, drol said:

Jaci Hermstad dead at 25.

She had a rare mutation of ALS called "FUS P525L". And the internet tells me of, at least, one other person who had it, teeanger Ben Merck, who already died in November 2019. It looks like an absolute and quick death sentence.

 

[Sir Creep 7,070]

Justifying

Any

Cunto’s

Inclusion

....since 2012.  gcreptile does it again.

Just post any old fuck in these threads I guess.  

[Toast 16,137]

2 hours ago, Sir Creep said:

Justifying

Any

Cunto’s

Inclusion

....since 2012.  gcreptile does it again.

Just post any old fuck in these threads I guess.  

 

I don't really have a problem with her being posted in this thread, because she and her sister are unusual cases of the disease, and that is worth recording in a thread about that disease.

 

There's nothing in those articles that even hints that she was famous in any way though.  No comparison with Laura Barry, who was a jockey and therefore someone in the public eye.  So she owned a horse and enjoyed riding?  So do several of my neighbours, but they're not famous either.

[alt obits guy 3,371]

Sean M. Healey, the co-chairman and former chief executive of Affiliated Managers Group, a $600 billion asset management business, has died from ALS. He was 59.

 

https://www.ft.com/content/4d6cf552-e2e7-4b45-9b3e-828263540dba

 

[Sir Creep 7,070]

4 hours ago, alt obits guy said:

Sean M. Healey, the co-chairman and former chief executive of Affiliated Managers Group, a $600 billion asset management business, has died from ALS. He was 59.

 

https://www.ft.com/content/4d6cf552-e2e7-4b45-9b3e-828263540dba

 

My money used to be managed by Healey, but the funds just sat there doing nothing.

[Joey Russ 7,220]

Ady Barkan seemed well enough to go to one of the protests: 

 
 He was just way too active for me to choose him in the ddp this year, though I guess a late year downturn wouldn’t shock. 

[alt obits guy 3,371]

Nanci Ryder, a publicist who battled ALS and who has been mentioned in several threads the past few years, has died. She was 67. A DDP pick, too.

 

https://people.com/movies/hollywood-publicist-nanci-ryder-dies-als/

 

 

[Joey Russ 7,220]

1 hour ago, alt obits guy said:

Nanci Ryder, a publicist who battled ALS and who has been mentioned in several threads the past few years, has died. She was 67. A DDP pick, too.

 

https://people.com/movies/hollywood-publicist-nanci-ryder-dies-als/

 

 

Mail obit

[Sean 6,315]

11 hours ago, Joey Russ said:

Mail obit

Hit number 4 for me.Been a slow year so far.

[Pedro67 232]

11 hours ago, Sean said:

Hit number 4 for me.Been a slow year so far.

Just us two then Sean. No4 for me too. 

[Spade_Cooley 9,519]

Doddie Weir, Rob Burrow and Stephen Darby meet up (virtually) for a chat about life with ALS in lockdown. 

[Spade_Cooley 9,519]

Former Slovak international and long-time DDP pick Marian Cisovsky dead at 40.

[gcreptile 10,967]

5 minutes ago, Spade_Cooley said:

Former Slovak international and long-time DDP pick Marian Cisovsky dead at 40.

Well done, Spade. You called it three years ago.

[Clorox Bleachman 2,410]

Doddie Weir was on the Scottish news to mark his 50th birthday, which is tomorrow. The report handily compared his appearance now to an interview of him last year. Overall not much decline and still walking/talking albeit slurred. Safe for 2020.

[gcreptile 10,967]

Two new tweets by Ady Barkan that demonstrate his steady decline:

 

 

[Perhaps 1,423]

Scottish footballer David Hagen dead aged 47 according to twitter: 

 

 

[msc 18,439]

Would put Reptile top of the DDP. The one year he wasn't sweating over his exact 20 till the deadline...

[Spade_Cooley 9,519]

The lack of any public appearance, especially when footballers-with-ALS are a regular interview topic for the broadsheets, made it clear he was going to be toast in 2020.