ALS/MND/other degenerative diseases

[Grim Up North 3,725]

9 minutes ago, gcreptile said:

Ughh... it's like you can follow the different stages of the disease with these people.

 

Rob Burrow: 2022

Doddie Weir: 2023

Stephan Darby: 2024

 

Yes horrible.

 

Doddie announced his diagnosis in 2017 though whereas Rob Burrow announced his diagnosis end of 2019. Burrow has been given an MND Fast Pass ticket.

 

 

[Toast 16,129]

On 30/11/2020 at 15:24, Toast said:

Could we change the title of this thread to something less specific, so we can talk about people with MND, Parkinsons, Huntingtons and other similar diseases.

As it stands,  it's a bit like lumping all dementias as Alzheimers.

Degenerative diseases might suffice as an umbrella term.

 

 

Going to ask this again.  Any reason why not?

[msc 18,434]

3 minutes ago, Toast said:

 

Going to ask this again.  Any reason why not?

 

@Death Impends - sounds like a good idea above when you have a spare moment?  Especially with MND/ALS being frequently intertwined in the press now.

 

 

[Grim Up North 3,725]

20 minutes ago, Toast said:

 

Going to ask this again.  Any reason why not?

 

I think the 3 on the video I linked all have ALS form of MND so I'm not sure if it was necessary for you to post this?

 

[Toast 16,129]

22 minutes ago, Grim Up North said:

 

I think the 3 on the video I linked all have ALS form of MND so I'm not sure if it was necessary for you to post this?

 

 

It's not intended as a comment on your post.

 

As I said earlier,  the thread title could be broadened to include other degenerative diseases such as Huntington's.

People have been using this thread to post about people, eg Marieke Vervoort, with other diseases, using ALS as a catch-all term much as people use Alzheimer's for any form of dementia.

Redefining the thread would validate such inclusions.

[Death Impends 7,953]

3 hours ago, msc said:

 

@Death Impends - sounds like a good idea above when you have a spare moment?  Especially with MND/ALS being frequently intertwined in the press now.

 

 

 

Noted

 

I've broadened the scope of the thread title now

[Spade_Cooley 9,515]

Shouldn't the subhead now be "It's not just Lou Gehrig's/Stephen Hawking's/Woody Guthrie's disease"?

[Toast 16,129]

23 minutes ago, Spade_Cooley said:

Shouldn't the subhead now be "It's not just Lou Gehrig's/Stephen Hawking's/Woody Guthrie's disease"?

 

I'd just drop it. 

Who tf is Lou Gehrig anyway? 

[arghton 6,692]

Jaan Kaplinski, Estonian poet, former parliament member and philosopher who was once nominated for a Nobel in literature has had ALS for the last four years and he's 80.

[arghton 6,692]

Thought I'd mention the passing of Canadian football player Michael Soles here as he battled ALS since 2005, for 16 years. (https://www.cfl.ca/2021/07/08/cfl-als-mourn-passing-michael-soles/)

 

Currently living people notable enough to have a wikipedia page with long ALS battles (diagnosed before 2010):

 

Early 1990s (around 1991?) - Jason Becker (b. 1969) Virtuoso musician.

2000 - Yasuhiko Funago (b. 1957) Japanese politician, member of the House of Councillors since 2019 after getting elected alongside Eiko Kimura.

2002 - Steve Smith (1964-2021) Football fullback.

2003 - Tempt One (~1968?-2023) Graffiti artist.

2005 - Augie Nieto (1958-2023) Life Fitness founder.

2007 - O. J. Brigance (b. 1969) Football linebacker.

[Grim Up North 3,725]

Rob Burrow returns to Headingley

 

Sobering viewing.

[gcreptile 10,963]

On 20/08/2021 at 13:30, Grim Up North said:

Rob Burrow returns to Headingley

 

Sobering viewing.

He says: "Lockdown has accelerated my demise":

https://www.itv.com/news/calendar/2021-08-18/lockdown-accelerated-my-demise-rob-burrow-thinks-lockdown-made-his-mnd-worse

 

Supposedly, he was doing okay until then. Which leaves us with the question whether his variant of ALS is one of the faster kind, or whether it just looks that way because he didn't work out.

I kind of think it's the former.

[arghton 6,692]

On 09/10/2020 at 21:30, gcreptile said:

Former Pittsburgh Steelers player Tunch Ilkin has ALS. I give him two years:

https://pittsburgh.cbslocal.com/2020/10/09/tunch-ilkin-diagnosed-with-als/

As mentioned in the American Football Players thread, took him in under a year.

[gcreptile 10,963]

Tired of picking Ady Barkan? How about climate activist Casey Harrell?

https://www.theguardian.com/society/2021/nov/17/casey-harrell-the-climate-activist-taking-on-wall-street-and-the-muscle-wasting-disease-thats-killing-him

[YoungWillz 21,023]

On 09/07/2021 at 01:17, arghton said:

Thought I'd mention the passing of Canadian football player Michael Soles here as he battled ALS since 2005, for 16 years. (https://www.cfl.ca/2021/07/08/cfl-als-mourn-passing-michael-soles/)

 

Currently living people notable enough to have a wikipedia page with long ALS battles (diagnosed before 2010):

 

Early 1990s (around 1991?) - Jason Becker (b. 1969) Virtuoso musician.

2000 - Yasuhiko Funago (b. 1957) Japanese politician.

2002 - Steve Smith (b. 1964) Football fullback.

2003 - Tempt One (b. ~1968?) Graffiti artist.

2005 - Augie Nieto (b. 1958) Life Fitness founder.

2007 - O. J. Brigance (b. 1969) Football linebacker.

Steve Smith being reported dead: 

DDP pick I believe. http://www.derbydeadpool.co.uk/deadpool2021/celebs_S.html#smithasx19

[Banana 859]

8 hours ago, YoungWillz said:

Steve Smith being reported dead: 

DDP pick I believe. http://www.derbydeadpool.co.uk/deadpool2021/celebs_S.html#smithasx19

 

QO https://uk.sports.yahoo.com/former-penn-state-raiders-fullback-steve-smith-dies-after-lengthy-battle-with-als-023353911.html

[gcreptile 10,963]

19 years of ALS... I had a period of picking him in deadpools 2-3 years ago, because he looked so close to death. I should have looked more at the speed of the decline.

[msc 18,434]

Former Burnley captain John Pender  (two promotion seasons back in the 90s) has joined the world's least fun sporting fraternity.   By which I mean he has MND.

[The Old Crem 3,580]

1 minute ago, msc said:

Former Burnley captain John Pender  (two promotion seasons back in the 90s) has joined the world's least fun sporting fraternity.   By which I mean he has MND.

Family believe it was caused by his career. So like many of the dementia cases. 

[Joey Russ 7,220]

On 23/08/2021 at 08:32, gcreptile said:

He says: "Lockdown has accelerated my demise":

https://www.itv.com/news/calendar/2021-08-18/lockdown-accelerated-my-demise-rob-burrow-thinks-lockdown-made-his-mnd-worse

 

Supposedly, he was doing okay until then. Which leaves us with the question whether his variant of ALS is one of the faster kind, or whether it just looks that way because he didn't work out.

I kind of think it's the former.

Well, Rob Burrow was well enough to attend a charity lunch. Also doesn’t look the worst here. Dunno, this case kind of confused me…

[Salmon Mousse 473]

On 11/12/2021 at 12:54, Joey Russ said:

Well, Rob Burrow was well enough to attend a charity lunch. Also doesn’t look the worst here. Dunno, this case kind of confused me…

 

He seems to be quite confident, at the moment:

[Eesti 151]

On 10/06/2021 at 17:04, arghton said:

Jaan Kaplinski, Estonian poet, former parliament member and philosopher who was once nominated for a Nobel in literature has had ALS for the last four years and he's 80.

 

He died 2 months after your post. 

[arghton 6,692]

1984 winter olympics competitor Frank Hansen has ALS according to wikipedia. Region locked article

[arghton 6,692]

On 09/07/2021 at 03:17, arghton said:

2000 - Yasuhiko Funago (b. 1957) Japanese politician, member of the House of Councillors since 2019 after getting elected alongside Eiko Kimura.

Still able to participate in meetings.

[arghton 6,692]

On 09/07/2021 at 03:17, arghton said:

2005 - Augie Nieto (b. 1958) Life Fitness founder.

Picture of Augie Nieto from february:

Sadly he seems to have deteriorated pretty fastly.