ALS/MND/other degenerative diseases

[Bibliogryphon 9,509]

Rob Burrow honoured at Windsor today.

[Salmon Mousse 473]

3 hours ago, Bibliogryphon said:

Rob Burrow honoured at Windsor today.

 

Poor guy appears to be nothing more than skin pulled over a skeleton, at this point

[gcreptile 10,939]

MND charity activist and superfan Chris Rimmer has died at 39:

https://www.liverpoolecho.co.uk/news/liverpool-news/inspirational-liverpool-fc-fan-who-23722744

 

List of the Missed, 2020.

[ladyfiona 2,559]

Not sure if this fits in here, but Chris Kamara is leaving Sky Sports at end of the season.

 

 

I saw he's recently been diagnosed with Speech Apraxia. I looked it up and in adults it is usually because any of the following:

• Stroke
• Traumatic head injury
• Tumor or surgical trauma
• Neurodegenerative diseases

[gcreptile 10,939]

John Driskell Hopkins of Grammy winning Zac Brown Band has ALS, but he says it's progressing slowly:

https://www.dailymail.co.uk/tvshowbiz/article-10841359/Zac-Brown-Bands-John-Driskell-Hopkins-reveals-hes-diagnosed-ALS-Tough-share.html

[gcreptile 10,939]

Peter Scott-Morgan, the "human cyborg", has died:

https://www.dailymail.co.uk/sciencetech/article-10919033/Worlds-cyborg-dies-aged-64-British-doctor-passes-away-peacefully.html

[msc 18,397]

2 minutes ago, gcreptile said:

Peter Scott-Morgan, the "human cyborg", has died:

https://www.dailymail.co.uk/sciencetech/article-10919033/Worlds-cyborg-dies-aged-64-British-doctor-passes-away-peacefully.html

 

Didn't last that long in the end, given the hope the treatment would slow ALS/MND.

 

Recipient of what is still my favourite DDP description I ever wrote.

[DevonDeathTrip 2,357]

On 29/04/2021 at 16:16, gcreptile said:

Next month, Stephen Fry is going to interview ALS-"cyborg" Peter Scott-Morgan:

 

 

Dead

[I.R.Baboon 221]

On 05/02/2021 at 18:00, Whitehouse said:

Sads news from the music world.

 

Just announced, founding member of the Golden Earring guitarist George Kooymans announced he's suffering from ALS. This means the death blow for the band who have played in the line up since 1969, and by that are the longest playing band in the same line up worldwide. These were childhood heroes. We used to vacation in a small town in the summer. They played the park annually and we could hear the concert from the back yard. 

 

 

 

Music magazine Oor has an interview with Kooymans this month. He's only slowly getting worse, can still drive a car (!), can still walk but uses a walker so he won't drown in the pond in his garden and uses a wheelchair for longer trips. He's working on mixing the album he made with Henny Vrienten (died in may) and Boudewijn de Groot, but cannot play guitar anymore.

 

Right now he doesn't look bad for a 74-year old.

 

[arghton 6,639]

Name for your lists, artist/activist Anthony Carbajal (not to be confused with Mexican former professional footballer Antonio Carbajal):

He's been battling ALS for over eight years, been a part of a lot of things, documentaries etc and it's apparently progressed quite quickly recently. He said that he feels like he's "near the end" last month.

Found out about him searching for updates on Augie Nieto (mentioned a few posts up) who still seems tough as hell. 

[arghton 6,639]

Antero Laukkanen, Member of the Parliament of Finland since 2015, diagnosed with ALS:

https://www.is.fi/politiikka/art-2000008940770.html

He's 64 and his legs aren't working that well anymore, so my bet is that he's got 2-3 years at most.

[MortalCaso 1,618]

On 28/08/2017 at 10:09, Sean said:

William White

(Wiki) American Football Player William White dead from ALS at age 56.

 

Originally diagnosed in 2016

 

[drol 11,799]

Former Argentine minister of education Esteban Bullrich (wiki), who resigned as a senator last year due to worsening ALS, on life support with lung infection and acute respiratory failure.

[drol 11,799]

Steve Gleason hospitalised , but apparently improving and not in danger.

[Grim Up North 3,717]

ALS Treatment

 

Only works for 2% of cases but wouldn't it be wonderful if one day this thread could be closed because no one died from this terrible disease any more.

[Octopus of Odstock 2,180]

On 24/05/2021 at 12:56, Grim Up North said:

 

Yes horrible.

 

Doddie announced his diagnosis in 2017 though whereas Rob Burrow announced his diagnosis end of 2019. Burrow has been given an MND Fast Pass ticket.

 

 

They've been reunited but only of sorts.

 

Stephen Darby, able to walk in the original, is now too ill to attend. Rob Burrow can no longer talk and Doddie Weir is a fraction of the man he used to be. Burrow says he's stabilised since lockdown.

 

It's on a video in BBC breakfast, just trying to find the link. I think Burrow and Darby are likely to go first; Doddie is probably likely to battle on until 2024 judging by their progression.

 

bbc.in/3LH018m

[arghton 6,639]

On 12/07/2022 at 15:39, arghton said:

Antero Laukkanen, Member of the Parliament of Finland since 2015, diagnosed with ALS:

https://www.is.fi/politiikka/art-2000008940770.html

He's 64 and his legs aren't working that well anymore, so my bet is that he's got 2-3 years at most.

Watching Antero Laukkanen, currently on live tv on a smaller Finnish channel.. He's declined a bit, looks frail and thin and talks slightly unclearly. Uses a rollator now. Very sharp however

 

Checking on other ALS sufferers, Anthony Carbajal is now bedbound.

Yasuhiko Funago looks very frail:

 

[tomarse 84]

Rob Burrow not looking that great, might see 2023 but not much beyond that 

 

https://www.bbc.co.uk/sport/rugby-league/63235539

 

 

Also Marcus Stewart was diagnosed with MND last month

[Salmon Mousse 473]

2 hours ago, tomarse said:

Rob Burrow not looking that great, might see 2023 but not much beyond that 

 

https://www.bbc.co.uk/sport/rugby-league/63235539

 

Going to be picked, correctly, by absolutely everyone in every pool next year. 

[Book 3,531]

2 hours ago, tomarse said:

Rob Burrow not looking that great, might see 2023 but not much beyond that 

 

https://www.bbc.co.uk/sport/rugby-league/63235539

 

 

Also Marcus Stewart was diagnosed with MND last month

Could be one for the main list...

[gcreptile 10,939]

I think we once saw that it takes 8 months from ALS end-of-life care to death. It was exactly those 8 months for Joost Van Der Westhuizen and for David Hagen.

They are thinking about putting Rob into end-of-life care, so is it 8 months plus a little extra?

[Grim Up North 3,717]

38 minutes ago, Book said:

Should be one for the main list...

Rugby League legend.

[Bibliogryphon 9,509]

12 hours ago, tomarse said:

Rob Burrow not looking that great, might see 2023 but not much beyond that 

 

https://www.bbc.co.uk/sport/rugby-league/63235539

 

 

Also Marcus Stewart was diagnosed with MND last month

 

I think this is a primer article to maximise publicity when he goes. I would say days or weeks rather than months

[HDS 234]

Former NFL player Tim Shaw, diagnosed with ALS in 2014 has a documentary series being released by his old team.

[Ulitzer95 12,432]

American composer/conductor Thomas Sleeper (wiki), dead at 66 from ALS.

A pick on several pools on here.