ALS/MND/other degenerative diseases

[Esox masquinongy 19]

ALS activist Ady Barkan has died at 39. RIP.

[Ulitzer95 12,642]

21 minutes ago, Esox masquinongy said:

ALS activist Ady Barkan has died at 39. RIP.

A DDP pick for 17 teams.

[Evil Grimace 359]

Rob Burrow continues the form spotting opportunities with 'Seven: Rob Burrow, the podcast' hosted by himself and his wife.  First guest has been Wayne Rooney.

 

Wayne Rooney talks of alcohol struggles in new Rob Burrow podcast

[The Old Crem 3,605]

On 13/09/2023 at 14:23, gcreptile said:

Stephen Darby update at the 5-year-mark:

https://www.dailymail.co.uk/femail/article-12512925/Liverpool-Stephen-Darby-Steph-Houghton-MND.html

 

Still very positive. And he was only 29 when diagnosed, so, extremely young. The younger you are, the slower MND seems to move.

He went on Holiday with his wife to Abu Dhabi a few weeks back. Obviously still fit enough to travel and cope with it all. 

[arghton 6,745]

On 02/03/2023 at 21:10, arghton said:

Finnish politician Antero Laukkanen makes one last appearance at parliament, short of breath with what seems to be a mobility scooter next to his chair but still able to talk quite clearly.

 

Another politician with ALS is Torao Tokuda, had it for around a decade now if he hasn't died off-radar sometime recently.

Antero Laukkenen in hospice now. 

[The Old Crem 3,605]

Stephen Darby has fallen twice this year according to his foundations Instagram page.

 

https://www.instagram.com/p/C0Tp2FSoDbR/?utm_source=ig_web_copy_link&igshid=MzRlODBiNWFlZA==

[Octopus of Odstock 2,197]

On 05/12/2023 at 17:13, The Old Crem said:

Stephen Darby has fallen twice this year according to his foundations Instagram page.

 

https://www.instagram.com/p/C0Tp2FSoDbR/?utm_source=ig_web_copy_link&igshid=MzRlODBiNWFlZA==

 

Darby in a video here. Now mostly wheelchair bound and definitely struggling to speak now. I think he'll still see 2025, but he's clearly on the downhill slope.

https://www.bbc.co.uk/sport/av/football/67915248

 

[Windsor 2,233]

Rob Burrow has been ‘surprised’ with his CBE by the Prince of Wales.

 

The fact they have presented the medal so quickly suggests it’s not just for the Facebook likes…

[DCI Frank Burnside 3,887]

Yep just like when Deborah James got her DBE so soon after she was awarded and she died a few weeks later

[YoungWillz 21,050]

John Adams, MND sufferer and fundraiser, under hospice care: 

Probably FFBI, so not sure he'd qualify for the Cup or other pools. BBC have covered him in the past: https://www.bbc.co.uk/news/uk-england-hereford-worcester-65532884

[Death Impends 7,977]

He was behind the quote in my DDP name, clearly famous enough

[The Old Crem 3,605]

On 11/01/2024 at 15:41, Windsor said:

Rob Burrow has been ‘surprised’ with his CBE by the Prince of Wales.

 

The fact they have presented the medal so quickly suggests it’s not just for the Facebook likes…

He met Princess Anne yesterday at an event. Still well enough then to go out in Public. 

[YoungWillz 21,050]

21 hours ago, YoungWillz said:

John Adams, MND sufferer and fundraiser, under hospice care: 

Probably FFBI, so not sure he'd qualify for the Cup or other pools. BBC have covered him in the past: https://www.bbc.co.uk/news/uk-england-hereford-worcester-65532884

John Adams died 29th February: 

 

[Octopus of Odstock 2,197]

On 08/01/2024 at 23:14, Octopus of Odstock said:

 

Darby in a video here. Now mostly wheelchair bound and definitely struggling to speak now. I think he'll still see 2025, but he's clearly on the downhill slope.

https://www.bbc.co.uk/sport/av/football/67915248

 

 

Darby, Rob Burrow and Marcus Stewart in a photo here: - https://www.bbc.co.uk/news/uk-england-merseyside-68647460

 

Stewart looks alright, Darby wheelchair bound... Rob Burrow - looks utterly terrible. I'd be shocked if he makes it to 2025. 

[JonNgoat 150]

Rob Burrow has passed away.

https://x.com/leedsrhinos/status/1797312588948144348?s=46

 

[The Old Crem 3,605]

Very sad news. 

[TQR 14,398]

For fuck sake, I go to Wiki in the wake of this sad news and this is what I was met with:

 

[arrowsmith 447]

3 minutes ago, TQR said:

For fuck sake, I go to Wiki in the wake of this sad news and this is what I was met with:

 

I wonder if that’s what did him in?

[YoungWillz 21,050]

Well that. is a bugger.

 

I nip out to the shops and come back to this.

 

Needless to say, he was on my Poker Team, so in comes a sub and I'll pick another.

 

RIP Rob, inevitable though it was.

[Master Obit 831]

22 minutes ago, JonNgoat said:

Rob Burrow has passed away.

https://x.com/leedsrhinos/status/1797312588948144348?s=46

 

 

I wouldn't necessarily say that this is sad as much as it is a relief, because the guy clearly had no quality of life.

 

There are not many people who would have fought such a dreadful disease with such resilience, keeping such a positive outlook and raising awareness in spite of how much of a strain it was. A true inspiration, and deserved every bit of plaudit that he got. Rest easy dude.

[Grim Up North 3,726]

Very sad indeed. RIP Rob.

 

we should remember that he had a wonderful yet horribly short adult life prior to his diagnosis where he was a sporting legend with hero status doing something he loved and from what I have seen on the documentaries married a wonderful person too and had a fabulous friend in Kevin Sinfield.

 

None of this changes the horrible way he died but there is a life there to be celebrated too - he should not be defined by MND.

[harrymcnallysblueandwhitearmy 1,689]

On MLB’s Lou Gehrig Day, too.

[maryportfuncity 10,647]

3 hours ago, Master Obit said:

 

I wouldn't necessarily say that this is sad as much as it is a relief, because the guy clearly had no quality of life.

 

There are not many people who would have fought such a dreadful disease with such resilience, keeping such a positive outlook and raising awareness in spite of how much of a strain it was. A true inspiration, and deserved every bit of plaudit that he got. Rest easy dude.

 

 

He was discussed in The Sunday Times this morning and the comment was made that his condition had got so bad that he couldn't even blink. 

 

Yeah, seriously, incredibly brave in the circumstances, a truly horrible medical condition.

[Youth in Asia 1,087]

That's a big DDP hit, 23 teams have him as a joker.

[Comped 529]

5 hours ago, maryportfuncity said:

 

 

He was discussed in The Sunday Times this morning and the comment was made that his condition had got so bad that he couldn't even blink. 

 

Yeah, seriously, incredibly brave in the circumstances, a truly horrible medical condition.

He couldn't blink?