I had a look through the Wikipedia page for people who have ALS, and I found the ones who are still alive, and compiled a list of what they're known for (to help theme teams), what age they are and when they were diagnosed.
Augie Nieto (entrepreneur, 58/59, diagnosed in 2005)
Fernando Ricksen (footballer, 40, diagnosed in 2013)
Marian Cisovsky (footballer, 37, diagnosed in 2014)
Stephen Hillenburg (cartoonist, 55, diagnosed in 2017)
Stephen Hawking (physicist, 75, diagnosed in 1963)
Steve Gleason (American football, 40, diagnosed in 2011)
Jerome Golmard (tennis, 43, diagnosed in 2014)
Neale Daniher (Aussie rules, 56, diagnosed in 2013)
Dwight Clark (American football, 60, diagnosed in 2017)
Jeff Capel II (American football, 64, diagnosed in 2014)
OJ Brigance (American football, 47, diagnosed in 2007)
Jason Becker (guitarist, 47, diagnosed in 1990)